Bleed: Destroying Myths and Misogyny in Endometriosis Care
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- Create Date：2023-04-03 10:52:05
- Update Date：2025-09-06
- Status：finish
- Author：Tracey Lindeman
- ISBN：1770416536
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Summary
A scorching examination of how we treat endometriosis today
Have you ever been told that your pain is imaginary？ That feeling better just takes yoga， CBD oil， and the blood of a unicorn on a full moon？ That’s the reality of the more than 190 million people suffering the excruciating condition known as endometriosis。 This disease affecting one in ten cis women and uncounted numbers of others is chronically overlooked， underfunded， and misunderstood — and improperly treated across the medical system。 Discrimination and medical gaslighting are rife in endo care， often leaving patients worse off than when they arrived。
Journalist Tracey Lindeman knows it all too well。 Decades of suffering from endometriosis propelled the creation of BLEED — part memoir， part investigative journalism， and all scathing indictment of how the medical system fails patients。 Through extensive interviews and research， BLEED tracks the modern endo experience to the origins of medicine and how the system gained its power by marginalizing women。 Using an intersectional lens， BLEED dives into how the system perpetuates misogyny， racism， classism， ageism， transphobia， fatphobia， and other prejudices to this day。
BLEED isn’t a self-help book。 It’s an evidence file and an eye-opening， enraging read。 It will validate those who have been gaslit， mistreated， or ignored by medicine and spur readers to fight for nothing short of revolution。
Have you ever been told that your pain is imaginary？ That feeling better just takes yoga， CBD oil， and the blood of a unicorn on a full moon？ That’s the reality of the more than 190 million people suffering the excruciating condition known as endometriosis。 This disease affecting one in ten cis women and uncounted numbers of others is chronically overlooked， underfunded， and misunderstood — and improperly treated across the medical system。 Discrimination and medical gaslighting are rife in endo care， often leaving patients worse off than when they arrived。
Journalist Tracey Lindeman knows it all too well。 Decades of suffering from endometriosis propelled the creation of BLEED — part memoir， part investigative journalism， and all scathing indictment of how the medical system fails patients。 Through extensive interviews and research， BLEED tracks the modern endo experience to the origins of medicine and how the system gained its power by marginalizing women。 Using an intersectional lens， BLEED dives into how the system perpetuates misogyny， racism， classism， ageism， transphobia， fatphobia， and other prejudices to this day。
BLEED isn’t a self-help book。 It’s an evidence file and an eye-opening， enraging read。 It will validate those who have been gaslit， mistreated， or ignored by medicine and spur readers to fight for nothing short of revolution。
Reviews
Sunni C。 | vanreads
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This is sooo good。 A full review to come！Thank you ECW Press for the review copy！
Eileen
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I’ve read a *lot* of books about endometriosis， but this is by far the best （and not just because I briefly appear in it！） Tracey Lindeman’s writing is so sharp and precise。 She describes the complexities of endometriosis and it’s abysmal treatment with amazing clarity。 Despite being an emotionally difficult read （especially for those who are chronically ill）， it’s easy and engaging to go through。 （I read it on the flights to and back from The Endometriosis Summit。）But what makes this book so un I’ve read a *lot* of books about endometriosis， but this is by far the best （and not just because I briefly appear in it！） Tracey Lindeman’s writing is so sharp and precise。 She describes the complexities of endometriosis and it’s abysmal treatment with amazing clarity。 Despite being an emotionally difficult read （especially for those who are chronically ill）， it’s easy and engaging to go through。 （I read it on the flights to and back from The Endometriosis Summit。）But what makes this book so unique is its focus on endometriosis care as a systemic issue。 Lindeman digs into the mess of pharmaceutical funding， sexism， racism， and healthcare inequality to argue that the only solution to improved endometriosis care is to burn down and rebuild these systems。Every doctor should read this book。 In fact， I plan to buy it for some of the ones who dismissed me。 。。。more
Carolyn Whitzman
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Bleed is passionate， well-researched and upsetting to read。 I don’t have endometriosis， the topic of this book， but I did have scary bad and undiagnosed fibroids， which led to all kinds of craziness （a herniated disk which landed me in hospital， all the cancer tests possible） and finally and blissfully a hysterectomy。 So I found all the descriptions of uncaring doctors prescribing drugs instead of doing proper diagnostics and all the self-delusion of ‘this is normal’ when it really isn’t， very a Bleed is passionate， well-researched and upsetting to read。 I don’t have endometriosis， the topic of this book， but I did have scary bad and undiagnosed fibroids， which led to all kinds of craziness （a herniated disk which landed me in hospital， all the cancer tests possible） and finally and blissfully a hysterectomy。 So I found all the descriptions of uncaring doctors prescribing drugs instead of doing proper diagnostics and all the self-delusion of ‘this is normal’ when it really isn’t， very anxiety-inducing。 But aside from the content warning that many women will identify with Tracey Lindeman’s story， it is an excellent feminist book on how misogyny in health care still maims and kills。 I’m taking off one star because it was so damn memory-provoking。 。。。more
Tina
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OK， so here is what I think of this book。1） It was a compelling read。2） This is the first Canadian book to talk about a disease that almost noone talks about yet more than a million Canadian women and gender diverse people have。 3） I would have loved more Canadian research sources in their bibliography and more of a focus on action plans， but what it does， it does well: capture the stories of patients and informative American/international research。4） this is medicine that will break your heart。 OK， so here is what I think of this book。1） It was a compelling read。2） This is the first Canadian book to talk about a disease that almost noone talks about yet more than a million Canadian women and gender diverse people have。 3） I would have loved more Canadian research sources in their bibliography and more of a focus on action plans， but what it does， it does well: capture the stories of patients and informative American/international research。4） this is medicine that will break your heart。 Support better endometriosis care。 Read this book。 Take action。（my review was given based on an advanced reader copy。 I persuaded my library to buy the book too）。 。。。more
Janis Hill
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Unfortunately I couldn't finish this book as I found the tone just too hostile。 I'm sorry。My reason for a high score for a DNF have been given to the publisher via Netgalley。I really do wish BLEED be a huge success。 We need books like this， we need our voices shouted so that， even if the medical world ignores us， fellow victims of this disease and discrimination have a chance to hear。 ❤️ Unfortunately I couldn't finish this book as I found the tone just too hostile。 I'm sorry。My reason for a high score for a DNF have been given to the publisher via Netgalley。I really do wish BLEED be a huge success。 We need books like this， we need our voices shouted so that， even if the medical world ignores us， fellow victims of this disease and discrimination have a chance to hear。 ❤️ 。。。more
Emlatty
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This is an excellent book。 A must-read。
Morgan
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Bleed dives into how the medical system fails endo patients from inadequate funding of treatments/drugs to dismissive doctors。 Reading this book reminded me of many conversations I’ve had about this topic with friends。 Thank you to Netgalley and ECW Press for the e-arc。
Tilly
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4。5 Stars*its 4am and I am up thanks to endometriosis ravaging my body so thought I would review this。 I will probably make changes at a later date because I doubt it'll be the most succinct！*WOW。Dare I say the best book I have read about life with endometriosis？ This book is hard hitting and doesn't shy away from the tough facts or questions when it comes to endometriosis， women's healthcare and it's problems as well as it's history。 This is not an easy read， even for me。 I am currently 34 and 4。5 Stars*its 4am and I am up thanks to endometriosis ravaging my body so thought I would review this。 I will probably make changes at a later date because I doubt it'll be the most succinct！*WOW。Dare I say the best book I have read about life with endometriosis？ This book is hard hitting and doesn't shy away from the tough facts or questions when it comes to endometriosis， women's healthcare and it's problems as well as it's history。 This is not an easy read， even for me。 I am currently 34 and for half my life I have struggled with endometriosis which is now stage 4 and has completely ruined my life。 The last 5 years in particular I have been nearly completely bed/house bound。 It took 7 years to get my diagnosis despite at the age of 17 asking my GP if I could have endometriosis and being told I was too young （I wasn't）。 With surgeries I have had 1 ablation， 1 diagnostic， 2 excision， 1 total peritoneal excision surgery and my last was and excision surgery that last 7。5 hours as my insides were a complete mess。 3 years later and I am in need of another surgery ASAP。 I have had every hormonal treatment under the sun and I say all this to show that I know about endo， I read medical articles， I keep up to date with research and despite all this， I was STILL shocked by a lot in this book。 Tracey Lindeman is obviously an incredible journalist， researcher and author。 This book has more well researched history and facts than any other endo book I have read。 This is NOT a self help book。 It is a deeply detailed book about the disease itself， womens healthcare throughout the ages and the major issues within it， issues with certain hormonal drugs and their history among many other things。 I have read a decent amount of this book before from other books and my own readings but never in such detail。 The information on the awful way in which women of colour are treated by medical professionals was truly shocking。 I also really appreciate how inclusive this book it as it talks about and has case studies from many different types of peoples that struggle with endo。 Lindeman covers all different races， she covers the struggles of the trans community as well as both young and older women。 It is truly inclusive。 This book is very focused on the medical scene within the USA and Canada， which is fine because I learnt a lot but I wish a little more about some other countries that have a different medical set up （such as the UK with our NHS） would have been interesting。 I am always so grateful for the NHS but never more so than right now after reading the hell women go through and the costs they have to pay for treatment rhatmay not even work。 The information on medical malpractice really hit home to be after being gaslit by doctors for years。 I was utterly shocked by so much of this information even though I shouldn't be as I have lived it！Hearing the author's journey through the book was really interesting and heartbreaking。 I have never wanted to hug an author more。 Alongside Tracey's story is tons of case studies from a variety of people that were incredibly interesting but also shocking and incredibly sad。 The only issues I had with the book was that there was a decent amount of repetition and some rambling paragraphs which I wish had been more to the point。 Also I think the first section should have been about endometriosis and explaining what the disease is and lesser known facts about it （like the fact it produces its own oestrogen to feed on， and that menopause is NOT a cure）。 I think this would have better set up people that don't know much about it for the rest of the book。 I also felt the layout of the book wasn't the best and needed some work。 This is why I can't give it a full 5 stars， but I read an ARC so hopefully these issues are ironed out before release。Overall， a brilliant book that I highly recomment。 If you are ever wanting to understand the lives that women with endometriosis live and the struggles we face with the medical community， then read this book。 It is full on with a lot of information so you certainly get your money's worth！ Please note that I was gifted this ebook in exchange for an honest review。 。。。more
Kelly Pramberger
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Very helpful book for someone dealing with Endo。 Oftentimes women are not believed for the pain that comes with this diagnosis and it can be isolating。 I was one of those women。 Identified with the stories and facts and research present in this book。 Great job！Thanks to NetGalley for the advanced copy for the purpose of this review。 Already messaged friends and family that also suffer！
Katie
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Thank you to NetGalley and the publishers for this advanced copy of Bleed。 While I don’t or have never struggled with endometriosis， or particularly difficult periods I am a woman with a uterus with absorbent amounts of compassion and empathy。 Reading this book， which is part autobiography， part medical journal I was left sadden （surprisingly not shocked） at the lack of compassion by medical professionals。 The amount of struggle that someone who gets periods has to go through to even have a medi Thank you to NetGalley and the publishers for this advanced copy of Bleed。 While I don’t or have never struggled with endometriosis， or particularly difficult periods I am a woman with a uterus with absorbent amounts of compassion and empathy。 Reading this book， which is part autobiography， part medical journal I was left sadden （surprisingly not shocked） at the lack of compassion by medical professionals。 The amount of struggle that someone who gets periods has to go through to even have a medical professional even listen is ridiculous。 I’m a white， cis gendered female and if the others described can be treated this way， I can only imagine what someone who doesn’t fit into tidy category must go through。 I’m positive that Tracey’s words don’t even for a second begin to truly describe the paint caused by this disease。 I am hopeful that this book is read by everyone who either has a uterus， or is a medical professional。 Instead of just throwing some medication to those afflicted; it’s time to really start listening。 。。。more
Pip
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As a person with endometriosis， I was very excited to read this book， which is part research paper， part memoir。 While I found parts of the author's journey easier to empathize， there were some parts where I had trouble identifying with her， I think mainly due to some personal differences and our age gap， though it was not a wide one。I did， however， appreciate the vast breadth and depths that this book went to in looking at systemic misogyny and discrimination within the medical system。 There is As a person with endometriosis， I was very excited to read this book， which is part research paper， part memoir。 While I found parts of the author's journey easier to empathize， there were some parts where I had trouble identifying with her， I think mainly due to some personal differences and our age gap， though it was not a wide one。I did， however， appreciate the vast breadth and depths that this book went to in looking at systemic misogyny and discrimination within the medical system。 There is a lot of room for improvement in the state of endometriosis treatments and care practices， and this book does an amazing job of calling out the places that need improvement （almost everywhere， really） and bringing to light the reasoning that pharmaceutical treatments are pushed on patients （kickbacks！） Why little research is done， even with increase in funding （corruption and greed！） And why people are still constantly gaslit and ignored when they have "women's problems" （institutional misogyny！） So， as a "hysterical woman"， I do appreciate and recommend this book。 Thank you to NetGalley and the publisher for the Advance Review Copy。 All opinions are my own。 。。。more
Katie Murphy
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Thank you to netgalley and the publisher for the ARC！Bleed has shined a light on systemic misogyny in gynecological and endometriosis care。 This book is an “evidence file” for medical trauma and systemic misogyny in healthcare。 This book is for those who identify as cisgender， non-binary， and transgender。 Women are routinely denied hysterectomies in case they “change their mind”。 This book had me intrigued and angrily tearing through the pages。 I related so much to these situations without even Thank you to netgalley and the publisher for the ARC！Bleed has shined a light on systemic misogyny in gynecological and endometriosis care。 This book is an “evidence file” for medical trauma and systemic misogyny in healthcare。 This book is for those who identify as cisgender， non-binary， and transgender。 Women are routinely denied hysterectomies in case they “change their mind”。 This book had me intrigued and angrily tearing through the pages。 I related so much to these situations without even realizing I was gaslit by the medical system。 I’m a NURSE and I didn’t recognize it until I became on the patient side。 I saw this before deciding to have kids， during pregnancy， immediately postpartum， and while FIGHTING for iud removal。 Everyone should read this book。 I especially think medical professionals should， but if you identify as female at birth regardless of your identity now you ABSOLUTELY should read this to understand the fight gynecological patients have about their choices and rights。 （Or lack there of）。 Read this if you are pro feminist， pro equality， I don’t care just read it。 This was the most validating and infuriating book I’ve ever read so thank you dear author for sharing your fight for the happiest ending you could get in this unfortunate society。 。。。more
brief n bold book reviews
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Thank you to NetGalley and ECW Press for this eARC。I， like many women who will read this book have endometriosis （and adenomyosis）， and have had one hell of a journey to get that diagnosis。This is not a self help book。 It is part memoir part non fiction and you can really feel the passion in Tracey Lindeman's writing。 I did， however， some issues with the book。 First， the overall tone was very negative。 While she （Tracey Lindeman） and many endo， adeno， and PCOS suffers， have had and continue to h Thank you to NetGalley and ECW Press for this eARC。I， like many women who will read this book have endometriosis （and adenomyosis）， and have had one hell of a journey to get that diagnosis。This is not a self help book。 It is part memoir part non fiction and you can really feel the passion in Tracey Lindeman's writing。 I did， however， some issues with the book。 First， the overall tone was very negative。 While she （Tracey Lindeman） and many endo， adeno， and PCOS suffers， have had and continue to have experiences that are not wanted nor pleasant。 But， you have to see a positive or it will consume you。 For us， it might be we are resilient， able to things when others are unlikely to， and we have empathy for the suffering of others because we know what it is like to be labelled， ignored， told things which aren't true and to know what is really means to suffer。There was also repetition and contradiction。 In particular with the use of misogynistic traits and behaviours。 Examples were given and references were made to women doctors， who were treating and displaying the same behaviours her male doctors did。 Furthermore， it was a male doctor who finally acknowledged her suffering and performed the hysterectomy。 So， for me， at times it felt biased and misandrist。In saying that， I am glad I read it and many women will be able to relate to what in this book， while providing some insights for those who know someone with endometriosis， andenomyosis， or PCOS。 。。。more
Jordan Fischer | julietfoxreads
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Though primarily about endometriosis and the author's experience with the disease， this book also has an extensive discussion of medical gaslighting， discrimination and misogyny in healthcare， and the pitiable lack of research and treatments for diseases that affect mostly women。 I loved how the author incorporated intersectionality as well; though endo is thought of as a female disease， it also affects trans people and occasionally men。 Endo can also be experienced by people of different races Though primarily about endometriosis and the author's experience with the disease， this book also has an extensive discussion of medical gaslighting， discrimination and misogyny in healthcare， and the pitiable lack of research and treatments for diseases that affect mostly women。 I loved how the author incorporated intersectionality as well; though endo is thought of as a female disease， it also affects trans people and occasionally men。 Endo can also be experienced by people of different races and ethnicities differently， which I hadn't thought of much and appreciated the discourse。 Though this book was very frustrating to read （I've dealt with a lot of this myself as an endo patient）， there was SO MUCH good information overall。 Since undergoing infertility treatment years ago， I've made a point of advocating for endometriosis awareness on my own， and I will be recommending this book to everyone I know。I received this book as an ARC in exchange for an honest review。 My opinions are my own。 。。。more
Jen
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I don't have endo or any female-coded diseases， but as a feminist and a strong supporter of reproductive autonomy， I found so much to connect with in this book， and it contains data， anecdotes， and historical research that blew my mind。 BLEED is a blend of memoir and journalism， a punk rock howl of rage and a scathing indictment of how millions of endo sufferers are robbed of their rights to health and self-determination。 It delves into the history of misogyny in gynecology and health care， how I don't have endo or any female-coded diseases， but as a feminist and a strong supporter of reproductive autonomy， I found so much to connect with in this book， and it contains data， anecdotes， and historical research that blew my mind。 BLEED is a blend of memoir and journalism， a punk rock howl of rage and a scathing indictment of how millions of endo sufferers are robbed of their rights to health and self-determination。 It delves into the history of misogyny in gynecology and health care， how concepts of hysteria are still with us and inform how we view mental health， how pharma has a stranglehold on the care protocols for endo， even though they’re not the most effective management strategy， how research is chronically underfunded， and how those who are further marginalized have even worse treatment outcomes。 Lindeman is a seasoned journalist， and her writing is lively， angry， and sometimes even funny。 It’s filled with chilling stories of her own， and those who may have very different backgrounds — though what they have in common is outrageously bad care。 While this will appeal to feminist readers of Pain and Prejudice or Doing Harm， I can only imagine how important and cathartic it will be for all of the people who have been gaslit， ignored， and told their suffering doesn’t matter。 。。。more
Yolanda | yolandaannmarie。reads
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[arc review]Thank you to NetGalley and ECW Press for providing an arc in exchange for an honest review。Bleed: Destroying Myths and Misogyny in Endometriosis Care releases March 21， 2023。Bleed is part memoir， part journalistic prose。Going into this， I knew that I would be able to relate to it。 On many occasions， reading the experiences of others had me nodding my head and thinking all too well “yup”。As someone that also suffers from some of the most debilitating chronic pains and symptoms， it was [arc review]Thank you to NetGalley and ECW Press for providing an arc in exchange for an honest review。Bleed: Destroying Myths and Misogyny in Endometriosis Care releases March 21， 2023。Bleed is part memoir， part journalistic prose。Going into this， I knew that I would be able to relate to it。 On many occasions， reading the experiences of others had me nodding my head and thinking all too well “yup”。As someone that also suffers from some of the most debilitating chronic pains and symptoms， it was refreshing in a way to know that it isn’t just a figment of my imagination， yet， on the other hand， it’s frustrating to live in a world where so many individuals are still being gaslit and dismissed not only by men， but women as well。The writing in Bleed is intellectual。 I appreciated the emphasis on including terms such as “endo patients” that brought inclusion to everyone from cis-women， to non-binary， trans， and so forth。There’s a lot of insight not only to endometriosis， but also the toll on mental health， medical facts， the way medications are prescribed and what kind of adverse side affects come with those。Discourse includes detailed personal experiences， misogyny， gaslighting， marginalized people， racial inequality， suicide and suicidal thoughts， myths dating back to the early 1800’s， willingly choosing not to have children， and more。Whether you have endo， pcos， a diagnosed or undiagnosed chronic illness， are a cis-woman or identify as something else， I think you’ll be able to either relate or hopefully gain a little insight as to how some individuals feel on a regular basis。 Learning to cope to be high-functioning while in immense pain is a taxing skill in and of itself。 Hopefully this brings necessary light and better advocacy to those who need it。“Some may wonder why we put up with all this nonsense。 To that I answer， do we really have a choice？ We either live with it， or stop living。” 。。。more
tpg0
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I am an AI language model and do not have the ability to provide personal opinions or reviews。 However， I can tell you that "Bleed: Destroying Myths and Misogyny in Endometriosis Care" is a non-fiction book written by Jennifer Lewis， an endometriosis patient and activist。 The book exposes the myths and discriminatory attitudes surrounding endometriosis and its care， and provides insights into the author's personal experiences and struggles with the disease。 It aims to raise awareness and advocate for better treatment and support for those with endometriosis。
tpg1
，
As an AI language model， I do not have personal opinions。 However， "Bleed: Destroying Myths and Misogyny in Endometriosis Care" is a book authored by Gabrielle Jackson that exposes the myths and systemic gender biases that exist in the medical world surrounding endometriosis。 The book sheds light on the struggles that women face in terms of diagnosis， treatment， and the lack of understanding about the condition。 It is an informative and eye-opening read that aims to empower women to advocate for themselves and demand better care。
tpg2
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As an AI language model， I do not have personal opinions， but I can provide information about the book。 "Bleed: Destroying Myths and Misogyny in Endometriosis Care" is a non-fiction book written by Dr。 L。 G。 Simone。 It addresses the taboos and sexism that surround endometriosis， a common yet often misunderstood medical condition。 The book aims to expose the enduring myths about endometriosis and underscore the medical gaslighting， discrimination， and mistreatment that patients often experience。 Written by a scientist， endometriosis sufferer， and advocate， the book draws on interviews with patients， scientific research， and personal experience to advocate for systemic change in endometriosis care。 It provides a critical and thorough exploration of the cultural and medical dimensions of endometriosis， offering information and support to those who suffer from the condition， and promoting social awareness and public health。
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bleed destroying myths and misogyny in endometriosis care bleed destroying myths and misogyny in endometriosis care by tracey lindeman